NHS England have announced a delay in the roll-out of the Care Data scheme until Autum 2014. Please click here for further information.
Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.
It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so we can see what has worked best.
Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then be used by others, such as researchers and those planning health services, to make sure we provide the best care possible for everyone.
You have a choice. If you are happy for your information to be used in this way you do not have to do anything.
If you have any concerns,please speak to practice staff or download a copy of the leaflet "Better information means better care" and/or click on the following links:-
NHS England - Care Data
NHS Choices - Care Data
Care Data - Frequently Asked Questions
Information Commissioner's Office: ICO Blog - NHS Patient Information and the Data Protection Act
If you require further information or would like to discuss your concerns, you are welcome to call the dedicated patient information line on: 0300 456 3531. This line also offers translation and text phone services.
If you would like to opt out of Care Data, please complete and sign the Care Data Opt Out Form and return it to the practice.
ENHANCED DATA SHARING
Enhanced Data Sharing (EDSM) is different from the Care Data Sharing on which you will all have received a leaflet of explanation from the Government.
Enhanced Data Sharing is the sharing of Data between different Health organisations and Public Health organisations, such as Community Nurses or Podiatry.
As a patient you have two options with regards to allowing the sharing of Data held at your GP Practice.
You can allow the GP Practice to share out your Data to allow other services to see your record, or you can refuse this to happen. This is called Sharing OUT.
You can allow the GP Practice to see data from other services you have used, such as Community Nursing, the Out of Hours Service or the Walk in Centre, or again, you can refuse this to happen. This is called Sharing IN.
Please read the information leaflet entitled "Your electronic patient record and the sharing of information - a patient's guide".Your electronic patient record and the sharing of information - a patient's guide, produced by the clinical system suppliers, TPP SystmOne.
If you have not already done so, please complete an Enhanced Data Sharing Model (EDSM) Consent Form as soon as possible so we can mark your preferences on your record.
Please note: If you have previously opted out of sharing your information via the Summary Care Record, you will still need to complete this form with your choices about sharing your health record within SystmOne.
SUMMARY CARE RECORD
The Central NHS Computer System is called the Summary Care Record (SCR). The Summary Care Record is meant to help emergency doctors and nurses help you when you contact them when the surgery is closed. Initially, it will contain just your medications and allergies.
Later on as the central NHS computer system develops (known as the "Summary Care Record" - SCR), other staff who work in the NHS will be able to access it along with information from hospitals, out of hours services, and specialists' letters that may be added as well.
Your information will be extracted from practices such as ours and held on central NHS databases.
As with all new systems, there are pros and cons to think about. When you speak to an emergency doctor you might overlook something that is important and if they have access to your medical record it might avoid mistakes or problems, although even then, you should be asked to give your consent each time a member of NHS Staff wishes to access your record, unless you are medically unable to do so.
On the other hand, you may have strong views about sharing your personal information and wish to keep your information at the level of this practice. Connecting for Health, the government agency who were responsible for providing information on the Summary Care Record, agreed with doctors leaders that new patients registering with the practice should be able to decide whether or not their information is uploaded to the Central NHS Computer System.
For existing patients it is different in that it is assumed that you want your record uploaded to the Central NHS Computer System unless you actively opt out.
Further information can be found on the Health and Social Care Information Centre (HSCIC) website.
If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery.
Download the Summary Care Record (SCR) Opt Out Form